The patient perspective on absence of disease activity in rheumatoid arthritis: a survey to identify key domains of patient-perceived remission.
Identifieur interne : 000183 ( Main/Exploration ); précédent : 000182; suivant : 000184The patient perspective on absence of disease activity in rheumatoid arthritis: a survey to identify key domains of patient-perceived remission.
Auteurs : Lilian H D. Van Tuyl [Pays-Bas] ; Martina Sadlonova [Autriche] ; Sarah Hewlett [Royaume-Uni] ; Bev Davis [Royaume-Uni] ; Caroline Flurey [Royaume-Uni] ; Niti Goel [États-Unis] ; Laure Gossec [France] ; Cecilie Heegaard Brahe [Danemark] ; Catherine L. Hill [Australie] ; Wijnanda Hoogland [Pays-Bas] ; John Kirwan [Royaume-Uni] ; Merete L. Hetland [Danemark] ; Dirkjan Van Schaardenburg [Pays-Bas] ; Josef S. Smolen [Autriche] ; Tanja Stamm [Autriche] ; Marieke Voshaar [Pays-Bas] ; George A. Wells [Canada] ; Maarten Boers [Pays-Bas]Source :
- Annals of the rheumatic diseases [ 1468-2060 ] ; 2017.
Descripteurs français
- KwdFr :
- Activités de la vie quotidienne, Adulte, Adulte d'âge moyen, Attitude envers la santé, Auto-évaluation diagnostique, Douleur (psychologie), Douleur (étiologie), Enquêtes et questionnaires, Fatigue (psychologie), Fatigue (étiologie), Femelle, Humains, Indice de gravité médicale, Induction de rémission, Mâle, Polyarthrite rhumatoïde (psychologie), Polyarthrite rhumatoïde (traitement médicamenteux), Recherche qualitative, Sujet âgé, Évaluation des résultats des patients.
- MESH :
- psychologie : Douleur, Fatigue, Polyarthrite rhumatoïde.
- traitement médicamenteux : Polyarthrite rhumatoïde.
- étiologie : Douleur, Fatigue.
- Activités de la vie quotidienne, Adulte, Adulte d'âge moyen, Attitude envers la santé, Auto-évaluation diagnostique, Enquêtes et questionnaires, Femelle, Humains, Indice de gravité médicale, Induction de rémission, Mâle, Recherche qualitative, Sujet âgé, Évaluation des résultats des patients.
English descriptors
- KwdEn :
- Activities of Daily Living, Adult, Aged, Arthritis, Rheumatoid (drug therapy), Arthritis, Rheumatoid (psychology), Attitude to Health, Diagnostic Self Evaluation, Fatigue (etiology), Fatigue (psychology), Female, Humans, Male, Middle Aged, Pain (etiology), Pain (psychology), Patient Outcome Assessment, Qualitative Research, Remission Induction, Severity of Illness Index, Surveys and Questionnaires.
- MESH :
- drug therapy : Arthritis, Rheumatoid.
- etiology : Fatigue, Pain.
- psychology : Arthritis, Rheumatoid, Fatigue, Pain.
- Activities of Daily Living, Adult, Aged, Attitude to Health, Diagnostic Self Evaluation, Female, Humans, Male, Middle Aged, Patient Outcome Assessment, Qualitative Research, Remission Induction, Severity of Illness Index, Surveys and Questionnaires.
Abstract
Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remission in RA identified 26 domains. The current study aimed to identify a short list of the most important aspects to inform future research.
DOI: 10.1136/annrheumdis-2016-209835
PubMed: 27903508
Affiliations:
- Australie, Autriche, Canada, Danemark, France, Pays-Bas, Royaume-Uni, États-Unis
- Caroline du Nord, Hollande-Septentrionale, Vienne (Autriche), Île-de-France
- Amsterdam, Paris, Vienne (Autriche)
Links toward previous steps (curation, corpus...)
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Le document en format XML
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Van Tuyl</name><affiliation wicri:level="3"><nlm:affiliation>Amsterdam Rheumatology & Immunology Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam Rheumatology & Immunology Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Sadlonova, Martina" sort="Sadlonova, Martina" uniqKey="Sadlonova M" first="Martina" last="Sadlonova">Martina Sadlonova</name><affiliation wicri:level="3"><nlm:affiliation>Medical University of Vienna, Vienna, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Medical University of Vienna, Vienna</wicri:regionArea><placeName><settlement type="city">Vienne (Autriche)</settlement><region nuts="2" type="province">Vienne (Autriche)</region></placeName></affiliation></author><author><name sortKey="Hewlett, Sarah" sort="Hewlett, Sarah" uniqKey="Hewlett S" first="Sarah" last="Hewlett">Sarah Hewlett</name><affiliation wicri:level="1"><nlm:affiliation>University of the West of England, Bristol, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of the West of England, Bristol</wicri:regionArea><wicri:noRegion>Bristol</wicri:noRegion></affiliation></author><author><name sortKey="Davis, Bev" sort="Davis, Bev" uniqKey="Davis B" first="Bev" last="Davis">Bev Davis</name><affiliation wicri:level="1"><nlm:affiliation>Patient Partner, Bristol, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Patient Partner, Bristol</wicri:regionArea><wicri:noRegion>Bristol</wicri:noRegion></affiliation></author><author><name sortKey="Flurey, Caroline" sort="Flurey, Caroline" uniqKey="Flurey C" first="Caroline" last="Flurey">Caroline Flurey</name><affiliation wicri:level="1"><nlm:affiliation>University of the West of England, Bristol, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of the West of England, Bristol</wicri:regionArea><wicri:noRegion>Bristol</wicri:noRegion></affiliation></author><author><name sortKey="Goel, Niti" sort="Goel, Niti" uniqKey="Goel N" first="Niti" last="Goel">Niti Goel</name><affiliation wicri:level="2"><nlm:affiliation>Quintiles and Duke University School of Medicine, Durham, North Carolina, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Quintiles and Duke University School of Medicine, Durham, North Carolina</wicri:regionArea><placeName><region type="state">Caroline du Nord</region></placeName></affiliation></author><author><name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Sorbonne Universités, UPMC Univ Paris 06; AP-HP, Pitié Salpêtrière Hospital, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Rheumatology, Sorbonne Universités, UPMC Univ Paris 06; AP-HP, Pitié Salpêtrière Hospital, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Heegaard Brahe, Cecilie" sort="Heegaard Brahe, Cecilie" uniqKey="Heegaard Brahe C" first="Cecilie" last="Heegaard Brahe">Cecilie Heegaard Brahe</name><affiliation wicri:level="1"><nlm:affiliation>Copenhagen Center for Arthritis Research and DANBIO, Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Copenhagen Center for Arthritis Research and DANBIO, Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup</wicri:regionArea><wicri:noRegion>Glostrup</wicri:noRegion></affiliation></author><author><name sortKey="Hill, Catherine L" sort="Hill, Catherine L" uniqKey="Hill C" first="Catherine L" last="Hill">Catherine L. Hill</name><affiliation wicri:level="1"><nlm:affiliation>University of Adelaide, Adelaide, South Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>University of Adelaide, Adelaide, South Australia</wicri:regionArea><wicri:noRegion>South Australia</wicri:noRegion></affiliation></author><author><name sortKey="Hoogland, Wijnanda" sort="Hoogland, Wijnanda" uniqKey="Hoogland W" first="Wijnanda" last="Hoogland">Wijnanda Hoogland</name><affiliation wicri:level="3"><nlm:affiliation>Patient Partner, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Patient Partner, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Kirwan, John" sort="Kirwan, John" uniqKey="Kirwan J" first="John" last="Kirwan">John Kirwan</name><affiliation wicri:level="1"><nlm:affiliation>University of Bristol, Bristol, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of Bristol, Bristol</wicri:regionArea><wicri:noRegion>Bristol</wicri:noRegion></affiliation></author><author><name sortKey="Hetland, Merete L" sort="Hetland, Merete L" uniqKey="Hetland M" first="Merete L" last="Hetland">Merete L. Hetland</name><affiliation wicri:level="1"><nlm:affiliation>Copenhagen Center for Arthritis Research and DANBIO, Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Copenhagen Center for Arthritis Research and DANBIO, Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup</wicri:regionArea><wicri:noRegion>Glostrup</wicri:noRegion></affiliation></author><author><name sortKey="Van Schaardenburg, Dirkjan" sort="Van Schaardenburg, Dirkjan" uniqKey="Van Schaardenburg D" first="Dirkjan" last="Van Schaardenburg">Dirkjan Van Schaardenburg</name><affiliation wicri:level="3"><nlm:affiliation>Amsterdam Rheumatology & Immunology Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam Rheumatology & Immunology Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Smolen, Josef S" sort="Smolen, Josef S" uniqKey="Smolen J" first="Josef S" last="Smolen">Josef S. Smolen</name><affiliation wicri:level="3"><nlm:affiliation>Medical University of Vienna, Vienna, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Medical University of Vienna, Vienna</wicri:regionArea><placeName><settlement type="city">Vienne (Autriche)</settlement><region nuts="2" type="province">Vienne (Autriche)</region></placeName></affiliation></author><author><name sortKey="Stamm, Tanja" sort="Stamm, Tanja" uniqKey="Stamm T" first="Tanja" last="Stamm">Tanja Stamm</name><affiliation wicri:level="3"><nlm:affiliation>Medical University of Vienna, Vienna, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Medical University of Vienna, Vienna</wicri:regionArea><placeName><settlement type="city">Vienne (Autriche)</settlement><region nuts="2" type="province">Vienne (Autriche)</region></placeName></affiliation></author><author><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name><affiliation wicri:level="3"><nlm:affiliation>Patient Partner, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Patient Partner, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Wells, George A" sort="Wells, George A" uniqKey="Wells G" first="George A" last="Wells">George A. Wells</name><affiliation wicri:level="1"><nlm:affiliation>University of Ottawa, Ottawa, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>University of Ottawa, Ottawa</wicri:regionArea><wicri:noRegion>Ottawa</wicri:noRegion></affiliation></author><author><name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name><affiliation wicri:level="3"><nlm:affiliation>Amsterdam Rheumatology & Immunology Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam Rheumatology & Immunology Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author></analytic><series><title level="j">Annals of the rheumatic diseases</title><idno type="eISSN">1468-2060</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Activities of Daily Living</term><term>Adult</term><term>Aged</term><term>Arthritis, Rheumatoid (drug therapy)</term><term>Arthritis, Rheumatoid (psychology)</term><term>Attitude to Health</term><term>Diagnostic Self Evaluation</term><term>Fatigue (etiology)</term><term>Fatigue (psychology)</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Pain (etiology)</term><term>Pain (psychology)</term><term>Patient Outcome Assessment</term><term>Qualitative Research</term><term>Remission Induction</term><term>Severity of Illness Index</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Activités de la vie quotidienne</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Attitude envers la santé</term><term>Auto-évaluation diagnostique</term><term>Douleur (psychologie)</term><term>Douleur (étiologie)</term><term>Enquêtes et questionnaires</term><term>Fatigue (psychologie)</term><term>Fatigue (étiologie)</term><term>Femelle</term><term>Humains</term><term>Indice de gravité médicale</term><term>Induction de rémission</term><term>Mâle</term><term>Polyarthrite rhumatoïde (psychologie)</term><term>Polyarthrite rhumatoïde (traitement médicamenteux)</term><term>Recherche qualitative</term><term>Sujet âgé</term><term>Évaluation des résultats des patients</term></keywords><keywords scheme="MESH" qualifier="drug therapy" xml:lang="en"><term>Arthritis, Rheumatoid</term></keywords><keywords scheme="MESH" qualifier="etiology" xml:lang="en"><term>Fatigue</term><term>Pain</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Douleur</term><term>Fatigue</term><term>Polyarthrite rhumatoïde</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Arthritis, Rheumatoid</term><term>Fatigue</term><term>Pain</term></keywords><keywords scheme="MESH" qualifier="traitement médicamenteux" xml:lang="fr"><term>Polyarthrite rhumatoïde</term></keywords><keywords scheme="MESH" qualifier="étiologie" xml:lang="fr"><term>Douleur</term><term>Fatigue</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Activities of Daily Living</term><term>Adult</term><term>Aged</term><term>Attitude to Health</term><term>Diagnostic Self Evaluation</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Patient Outcome Assessment</term><term>Qualitative Research</term><term>Remission Induction</term><term>Severity of Illness Index</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Activités de la vie quotidienne</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Attitude envers la santé</term><term>Auto-évaluation diagnostique</term><term>Enquêtes et questionnaires</term><term>Femelle</term><term>Humains</term><term>Indice de gravité médicale</term><term>Induction de rémission</term><term>Mâle</term><term>Recherche qualitative</term><term>Sujet âgé</term><term>Évaluation des résultats des patients</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remission in RA identified 26 domains. The current study aimed to identify a short list of the most important aspects to inform future research.</div></front></TEI><affiliations><list><country><li>Australie</li><li>Autriche</li><li>Canada</li><li>Danemark</li><li>France</li><li>Pays-Bas</li><li>Royaume-Uni</li><li>États-Unis</li></country><region><li>Caroline du Nord</li><li>Hollande-Septentrionale</li><li>Vienne (Autriche)</li><li>Île-de-France</li></region><settlement><li>Amsterdam</li><li>Paris</li><li>Vienne (Autriche)</li></settlement></list><tree><country name="Pays-Bas"><region name="Hollande-Septentrionale"><name sortKey="Van Tuyl, Lilian H D" sort="Van Tuyl, Lilian H D" uniqKey="Van Tuyl L" first="Lilian H D" last="Van Tuyl">Lilian H D. Van Tuyl</name></region><name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name><name sortKey="Hoogland, Wijnanda" sort="Hoogland, Wijnanda" uniqKey="Hoogland W" first="Wijnanda" last="Hoogland">Wijnanda Hoogland</name><name sortKey="Van Schaardenburg, Dirkjan" sort="Van Schaardenburg, Dirkjan" uniqKey="Van Schaardenburg D" first="Dirkjan" last="Van Schaardenburg">Dirkjan Van Schaardenburg</name><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name></country><country name="Autriche"><region name="Vienne (Autriche)"><name sortKey="Sadlonova, Martina" sort="Sadlonova, Martina" uniqKey="Sadlonova M" first="Martina" last="Sadlonova">Martina Sadlonova</name></region><name sortKey="Smolen, Josef S" sort="Smolen, Josef S" uniqKey="Smolen J" first="Josef S" last="Smolen">Josef S. Smolen</name><name sortKey="Stamm, Tanja" sort="Stamm, Tanja" uniqKey="Stamm T" first="Tanja" last="Stamm">Tanja Stamm</name></country><country name="Royaume-Uni"><noRegion><name sortKey="Hewlett, Sarah" sort="Hewlett, Sarah" uniqKey="Hewlett S" first="Sarah" last="Hewlett">Sarah Hewlett</name></noRegion><name sortKey="Davis, Bev" sort="Davis, Bev" uniqKey="Davis B" first="Bev" last="Davis">Bev Davis</name><name sortKey="Flurey, Caroline" sort="Flurey, Caroline" uniqKey="Flurey C" first="Caroline" last="Flurey">Caroline Flurey</name><name sortKey="Kirwan, John" sort="Kirwan, John" uniqKey="Kirwan J" first="John" last="Kirwan">John Kirwan</name></country><country name="États-Unis"><region name="Caroline du Nord"><name sortKey="Goel, Niti" sort="Goel, Niti" uniqKey="Goel N" first="Niti" last="Goel">Niti Goel</name></region></country><country name="France"><region name="Île-de-France"><name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name></region></country><country name="Danemark"><noRegion><name sortKey="Heegaard Brahe, Cecilie" sort="Heegaard Brahe, Cecilie" uniqKey="Heegaard Brahe C" first="Cecilie" last="Heegaard Brahe">Cecilie Heegaard Brahe</name></noRegion><name sortKey="Hetland, Merete L" sort="Hetland, Merete L" uniqKey="Hetland M" first="Merete L" last="Hetland">Merete L. Hetland</name></country><country name="Australie"><noRegion><name sortKey="Hill, Catherine L" sort="Hill, Catherine L" uniqKey="Hill C" first="Catherine L" last="Hill">Catherine L. Hill</name></noRegion></country><country name="Canada"><noRegion><name sortKey="Wells, George A" sort="Wells, George A" uniqKey="Wells G" first="George A" last="Wells">George A. Wells</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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